Aim of the study
To understand female transplant patients’ experiences and needs at different stages of the transplant process, and to identify where and how improvements can be made to address these.
Type of study
Qualitative study.
Who is able to participate?
Female patients who are either on the transplant waiting list or who have received a solid organ transplant, aged 18 or above, and living in the UK.
Where is the study happening?
The UK.
Open and close dates of recruitment
The survey will open on 23rd September and run until 2nd December at latest. It may close slightly earlier depending on the number of responses obtained.
How do I get involved?
To participate in the survey, please click here or at the bottom of the page. Please read the patient information sheet explaining the study and complete the online survey questions. There is a link within the survey to a separate form where you can express interest in being contacted about later stages of the study.
Summary
Female patients experience specific challenges as they go through the organ transplant process. This study, funded by NHS Blood and Transplant, aims to understand female transplant patients’ experiences at different stages of the transplant process, and identify where and how improvements can be made to address these. Patients will complete an online survey about their experiences and will be invited to participate in later stages of the study including a video interview and a workshop to feedback findings to transplant staff. Staff and patients will work together to discuss the findings and produce guidance and recommendations for improving patient care.
Has this study received ethical approval?
Ethical approval for the study has been provided by the Edinburgh Medical School Research Ethics Committee (EMREC). The reference is: 24-EMREC-050.
Lead investigators
The study is co-led by Professor Jeni Harden (University of Edinburgh) and Professor Lorna Marson (Professor of Transplant Surgery at Edinburgh Royal Infirmary) with Dr Helen Eborall (University of Edinburgh) as Co-Investigator and Dr Clare Sharp (University of Edinburgh) as the study Research Fellow leading on the research activities.
Who is funding the study?
NHS Blood and Transplant.