Aim of the study
The University of Aberdeen are conducting the KINDER study to help understand why kidney care in Scotland is not the same for everyone, and how to make it fairer. We are looking for people with kidney disease/ kidney condition in Scotland to share their views and experiences of their kidney care and kidney disease/ condition to take part in this important study.
Study type
It is an interview study.
Who is able to participate?
The study is looking for people:
- Aged 18-65 years.
- Who have kidney disease or a condition, that is CKD (chronic kidney disease) or AKI (acute kidney injury).
- Living in Scotland
Will I be compensated for my participation?
You will receive a £25 shopping voucher as a thank you.
Where is the study happening?
An interview will be conducted with you. This will take around 1 hour. Depending on your location, we will talk to you either via the telephone, video calling or face to face.
In our talk with you you will be asked how your kidney disease or condition affects your life and what your experience with NHS kidney care has been like.
Open and close dates of recruitment
May 2024 – April 2025
How do I get involved
If you are interested in taking part in this study please contact the organisers on 01224 438182 or email [email protected].
Summary
The researchers are part of University of Aberdeen team seeking to address inequalities in kidney healthcare in Scotland.
In the KINDER study, they will talk to people of working age in Scotland who have kidney disease to hear about what it is like for them to live with it and access care.
They will also have group discussions with primary care staff to learn about how they diagnose the disease, help patients get the care they need, and any changes they have had to make in their approach.
Then, in workshops with patients and professional experts, they will agree on priority strategies and actions that address the problems that they identify.
For more information on the study:
Visit the page below for study details:
https://bit.ly/kinder-community-info
Click through for a short video:
https://bit.ly/kinder-community
Has this study received ethical approval?
This study has received ethical approved by NHS Health Research Authority and
NHS Research Ethics (Office for Research Ethics Committees Northern Ireland 24/NI/0037).
Lead investigators
- Dr Magdalena Rzewuska Díaz (University of Aberdeen),
- Dr Simon Sawhney (University of Aberdeen),
- Dr Tom Blakeman (University of Manchester)
Who is funding the study?
The project is funded by the Scottish Government’s Chief Scientist Office.