Living with a long-term condition study

This project will create and test a new questionnaire to measure the emotional distress related to living with a long-term health condition like kidney disease and will allow us to provide the most appropriate support for people living with long-term health conditions.

Aim of the study

This project will create and test a new questionnaire to measure the emotional distress related to living with a long-term health condition like kidney disease. The questionnaire will allow us to provide the most appropriate support for people living with long-term health conditions.

Study type

Psychometric validation study

Who is able to participate?

Eligible people are those who are:

  • over the age of 18
  • who are living with a long-term condition (e.g. kidney disease)
  • UK residents
  • have an email address
  • can write and speak English (in order to understand/complete study procedures)

Where is the study happening?

All study procedures are completed online. Participation includes completing two short questionnaire online, one week apart. The first questionnaire takes about 20 minutes to complete and the second one takes 5 minutes to complete. The questionnaires will ask people about their mood and experience of living with a long-term health condition.

Open and close dates of recruitment

Open date: 31/05/2023

End date: 31/05/2024

How do I get involved

All study information, including the link to take part in the survey can be found here: https://linktr.ee/ltc_study

Summary

We know that psychological distress (anxiety and depression) is common in and experienced differently by people living with long-term health conditions. Being able to better measure and understand how people living with a LTC experience psychological distress would allow us to provide interventions specifically tailored to the challenges of living with a LTC and therefore provide the most appropriate support for these people. Such a measure would also be useful in research so we can understand how illness-related distress is experienced in different patient groups.

This project will therefore create and test a new questionnaire to measure the emotional distress related to living with a long-term health condition. We will test how valid and reliable the measure is.

Has this study received ethical approval? Please provide REC number.

Yes, from the King’s College London Research Ethics Committee. Reference #: RESCM-22/23-36320

Lead investigators

Professor Rona Moss-Morris and Dr Annie Jones (King’s College London)

Who is funding the study?

There is no funding for this study.