Aims of the study

This study aims to examine whether the questions in a new patient-reported experience survey are relevant and easy to understand. This will help improve understanding of healthcare experiences after kidney transplantation.

Study type

Interviews

Who is able to participate?

People who live in the United Kingdom, are aged 18 years or older and have received a kidney transplant at least 12 months ago.

Where is the study happening?

This study is taking place online. Interviews will be held remotely over phone or video call.

Open and close dates of recruitment

26 August 2026 - 31 January 2027

How do I get involved?

To get involved, complete the expression of interest form: https://forms.office.com/e/5e5aL4eruR

Summary

Organ transplantation can transform lives, but life after transplant requires long-term follow-up healthcare.

This study follows on from previous research, which explored the healthcare experiences of solid organ transplant recipients. Those findings were used to inform the development of a Patient-Reported Experience Measure (PREM) to measure healthcare experiences after transplant in transplant recipients.

PREMs are surveys that allow people to answer questions about their healthcare experiences. We would now like to interview transplant recipients to get their thoughts on the draft PREM. This includes considering whether the questions are relevant to post-transplant healthcare, are easy to understand, and cover all necessary healthcare aspects.

We hope the information gathered from the interviews will help us to refine the survey and address any issues with its completion. It is hoped that this survey will have multiple uses, for example, to indicate the quality of healthcare and identify areas where there are opportunities to improve healthcare services.

Has this study received ethical approval

This study has been approved by the Faculty of Medical Sciences Research Ethics Committee, part of Newcastle University's Research Ethics Committee (63020/2023).

Lead investigators

Professor Catherine Exley, Dr Ben Rimmer.

Who is funding the study

This work is part of the research taking place in the Newcastle and Cambridge Blood and Transplant Research Unit in Organ Donation and Transplantation. The Research Unit is funded by the National Institute for Health and Care Research and backed by NHS Blood and Transplant.