Kidney Care UK online community

At Kidney Care UK, we believe no one should have to face kidney disease alone. To connect with other people affected by CKD in the UK, join our friendly, supportive online community on Facebook.

Our online community is a safe space for thousands of people with kidney disease and their families and carers.

If you’re looking to

  • speak to others who are going through the same things as you are
  • talk about the issues you don’t want, or need, to raise with your medical team
  • just someone to chat to when you’re unable to sleep...

... then the Kidney Care UK closed support group on Facebook is for you.

Our closed Facebook group puts you in touch with others affected by kidney disease, giving you a chance to share experiences and tips on living with kidney related conditions. The group is moderated and private.

With over 15,000 members at different stages of kidney disease, you do not have to face kidney disease alone.

Kidney Matters Illustration

Join the Kidney Care UK Facebook group

  • If you search for Kidney Care UK on Facebook, you’ll see our public page and our private group.
  • We’d love you to follow the public Kidney Care UK Facebook page too as this is the place where you can get all the latest updates from the charity!
  • To join the group, click on the private group option and answer the two questions we ask all members to answer.
  • You’ll be accepted into the group as soon as possible!
  • Please take a few minutes to read the pinned post(s) and review the group rules.

Please note that we receive a large number of requests to join the community, and many of these are bots or fake accounts trying to infiltrate the Group in order to promote fake or unauthorised products. 

The online community is a safe, supportive space, and we take this really seriously.

For this reason we will automatically decline any requests from people who we suspect may not be genuine. Examples of indicators of this include:

  • People without a profile image
  • People who have only joined Facebook recently
  • People who do not have much activity on their page,
  • People who do not have much activity on their page in the last 5 years, or whose only activity is sharing promotional content from only one or two sites

If you have requested to join and have not received approval within 7 days, it may be that your request has been declined for one of these reasons. If you wish to discuss this, please email [email protected].

Connect with other kidney patients in the UK

  • Young Adult Kidney Group (YAKG)

    Started in 2016 as a way for young people with kidney disease to come together, the Young Adult Kidney Group has grown into a safe place for young patients to support one another online.

  • Peer support

    Whether you have questions about kidney disease, are wondering what to expect, or just want to talk to someone who gets it, our peer support volunteers can help.