Your stories

Chronic kidney disease (CKD) can affect anyone. Patients, carers and Kidney Care UK fundraisers from all over the UK share their stories of diagnosis, dialysis, kidney-friendly cooking and more.

  • Families, Kidney conditions and diagnosis, Living with kidney disease

    Charlotte's story: living with nephrotic syndrome & FSGS

    Charlotte discusses her kidney disease journey, from changes to her physical appearance and feelings of isolation to living her best life after her diagnosis.

  • Diet and nutrition, Fundraising, Haemodialysis, Kidney conditions and diagnosis, Living with kidney disease, Stage 5 CKD (Kidney failure), Transplant, Travelling and CKD

    Living with CKD: Kidney Care UK's support

    From finding kidney-friendly recipes to accessing help with debt and housing, Rayhanneh, Emily, Glenn, Dave and Lee share how Kidney Care UK's services have supported them.

  • Kidney conditions and diagnosis, Living with kidney disease, Peritoneal dialysis, Rare renal, Stage 5 CKD (Kidney failure), Transplant

    Mariann's story: living with CKD and PTLD

    Mariann explains how a rare diagnosis of CKD and PTLD has impacted her life, from difficult chemotherapy sessions to her uncle Jeff donating a kidney to her.

  • Families, Haemodialysis, Kidney conditions and diagnosis, Living with kidney disease, Stage 5 CKD (Kidney failure), Women's health

    Living with lupus and CKD

    From diagnosis tips to the importance of support networks, Karisse, Stuart, Sara, Michelle, Gillian, Anoushica and Berlina share the ups and downs of living with lupus and CKD.

  • Families, Haemodialysis, Living with kidney disease, Peritoneal dialysis, Stage 5 CKD (Kidney failure), Transplant

    Jade and Darren's story: living with CKD

    Jade has been living with CKD since childhood. She discusses how CKD has impacted her, and, with her partner Darren, explains how and why they both fundraise for Kidney Care UK.

  • Haemodialysis, Home therapies, Living with kidney disease, Peritoneal dialysis, Rare renal, Stage 5 CKD (Kidney failure), Transplant

    Mike's story: living with Alport syndrome

    Mike's family has a history of CKD and he was diagnosed with a rare condition as a teenager. He has recently had his second kidney transplant and feels like he has been given his life back.

  • Kidney conditions and diagnosis, Living with kidney disease, Rare renal, Stage 1-3 CKD, Women's health

    Katie's story: living with CKD and LPHS

    From delayed diagnoses to new medication, Katie discusses how living with LPHS and CKD has taken its toll and how she's striving to help others living with the condition.

  • Families, Haemodialysis, Living with kidney disease, Peritoneal dialysis, Stage 5 CKD (Kidney failure), Transplant

    Tony's story: living with kidney disease

    After fears of a second transplant kept him on dialysis, Tony explains how his godson inspired him to go back on the transplant list, and how his altruistic donor is a 'real life superhero'.

  • Kidney conditions and diagnosis, Living with kidney disease, Stage 1-3 CKD

    Penny's story: living with CKD and sepsis

    After a bout of sepsis in hospital, it took months for Penny to received a diagnosis of CKD but she maintains a positive outlook. It is always 'What's next', and never 'What if...'

  • Kidney conditions and diagnosis, Living with kidney disease, Medication, Peritoneal dialysis, Stage 5 CKD (Kidney failure), Transplant

    Jon's story: living with CKD and sepsis

    After living through two kidney transplants and seven bouts of sepsis, Jon shares how sepsis has impacted him, and explains the vital importance of knowing the signs.

  • Families, Kidney conditions and diagnosis, Living with kidney disease, Peritoneal dialysis, Stage 5 CKD (Kidney failure), Transplant

    Sally's story: living with kidney disease and PKD

    After a diagnosis as a teenager, Sally received a kidney transplant. Now, 30 years later, she is cruising around Croatia and making kidney disease work around her.

  • Families, Haemodialysis, Living with kidney disease, Stage 5 CKD (Kidney failure), Transplant, Travelling and CKD

    Deborah's story: living with kidney disease

    Diagnosed with CKD at 27, Deborah has since received a 'perfect match' kidney transplant. She discusses living with CKD, from the joys of holidaying to the frustrations of benefits.

  • Haemodialysis, Home therapies, Living with kidney disease, Stage 5 CKD (Kidney failure), Transplant, Travelling and CKD

    Laura's story: living with kidney disease

    Laura’s kidney disease diagnosis hasn’t stopped her from enjoying music festivals. She shares her story and provides tips and advice on how to party with kidney disease.

  • Haemodialysis, Kidney conditions and diagnosis, Living with kidney disease, Stage 1-3 CKD, Travelling and CKD

    Jacqueline's story: living with CKD and bipolar

    After her diagnosis of stage 3 kidney disease, Jacqueline struggled to balance life with CKD and bipolar. But neither has stopped her from travelling the world, from Greece to Tonga.

  • Diet and nutrition, Living with kidney disease

    "I enjoy the many other blessings this month brings"

    Kidney patients Sumaya and Rehana share their experience of Ramadan while living with chronic kidney disease (CKD).

  • Fundraising, Haemodialysis, Living with kidney disease, Rare renal, Travelling and CKD

    Charlie's story: living with nephronophthisis

    #KidneyWarrior Charlie won't let renal failure stop him from living an active lifestyle and raising funds to support the kidney community.

  • Health professionals, Living with kidney disease, Stage 5 CKD (Kidney failure), Transplant

    Angela's story: living with kidney disease

    Angela had a life-saving kidney transplant back in 1970. In 2020, she celebrated 50 years of healthy active life with the same kidney.

  • Families, Living with kidney disease, Stage 5 CKD (Kidney failure), Transplant

    Sharon's story: living with kidney disease

    It was time for Sharon to decide whether to opt for a whole-organ pancreas transplant or islet transplantation after her successful kidney transplant.

  • Fundraising, Living with kidney disease, Rare renal

    John's story: living with FSGS

    John is the bass guitarist for the band Da Management. Grateful for the care he has received for his rare kidney condition, he's raised money for charities like Kidney Care UK for years.

  • Fundraising, Haemodialysis, Living with kidney disease, Transplant

    David Rand's story: living with kidney disease

    David Rand talks about his kidney disease journey and being Team Manager of the Royal Liverpool Transplant Team (Adults) at the British Transplant Games.

  • Families, Haemodialysis, Living with kidney disease, Stage 5 CKD (Kidney failure), Transplant

    Alison's story: living with kidney disease

    Alison Brown discusses her experience of the Enhanced Recovery After Surgery (ERAS) programme after her second kidney transplant.