Aims of the study
This study aims to test how new patient-reported outcome surveys work in practice to improve understanding of quality of life after transplant for people who have received a kidney transplant
Study type
Online surveys
Who is able to participate?
People who live in the United Kingdom, are aged 18 years or older and have received a kidney transplant at least 12 months ago
Where is the study happening?
This study is taking place online
Open and close dates of recruitment
26th August 2026 - 31st January 2027
How do I get involved?
To get involved, visit our website: https://sites.google.com/view/qol-at-pilot/home
Summary
Organ transplantation can transform lives, but life after transplant often comes with physical, psychological, and social challenges.
This study follows on from previous research, which explored the quality of life experiences of solid organ transplant recipients. Those findings were used to inform the development of Patient-Reported Outcome Measures (PROMs) to measure quality of life and symptoms in transplant recipients.
PROMs are surveys that allow people to answer questions about their quality of life, health and wellbeing. We are now testing the surveys and would like to invite people to fill them in online to help us understand how they work in practice.
We hope the information gathered from this study will help us to refine and validate the surveys and address any issues with their completion. It is hoped that these surveys will have multiple uses, for example, to identify potential support needs, stimulate discussion at follow-up appointments, or track changes in quality of life over time.
Has this study received ethical approval
This study has been approved by the Faculty of Medical Sciences Research Ethics Committee, part of Newcastle University's Research Ethics Committee (3072/58662)
Lead investigators
Professor Catherine Exley, Dr Ben Rimmer
Who is funding the study
This work is part of the research taking place in the Newcastle and Cambridge Blood and Transplant Research Unit in Organ Donation and Transplantation. The Research Unit is funded by the National Institute for Health and Care Research and backed by NHS Blood and Transplant
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