The Kidney Patient Involvement Network (KPIN)

The Kidney Patient Involvement Network (KPIN) is a network of kidney organisations, charities and individuals committed to working collaboratively on initiatives to improve standards and develop patient leaders of the future.

Are you a patient or carer who is interested in using your own experience of chronic kidney disease to become a patient leader and contribute to positive changes in all aspects of kidney care?

Or are you a healthcare professional or researcher who would like to offer involvement opportunities to a wider range of patients and carers?

If so, we’d like to invite you to join the Kidney Patient Involvement Network (KPIN).

What is the Kidney Patient Involvement Network (KPIN)?

We are an inclusive, friendly network of kidney organisations, charities and individuals who are committed to working together for quality patient and public involvement and engagement (PPI/E).

As a patient or carer member of KPIN, we will offer you access to a wide variety of opportunities to be involved in a broad range of projects and events, from volunteering in your local renal unit to sitting on a decision-making board or committee.

You shouldn’t worry if you’ve never done something like this before, we will also provide you with lots of training, resources and support from other ‘expert patients’. So, you can feel confident that your views and opinions will be heard.

If you join as a professional member of KPIN, we can allow you to share your involvement opportunities with our patient and carer network.

KPIN Patient and Carer Membership

We would like to encourage all kidney patients, carers and family members to become members of KPIN, regardless of whether you’re already actively involved in aspects of renal services delivery or whether you’re only just developing an interest.

KPIN is a welcoming, inclusive network and we hope that our members will be willing to take the opportunity to share their knowledge, experience and best practice examples with us.

Benefits of KPIN membership:

  • Help define an effective involvement and engagement strategy
  • Help become cultivators and change agents within the Network
  • Provide an infrastructure for people to share data and experiences
  • Facilitate discussion, experimentation and innovation
  • Develop relationships
  • Create opportunities for focused interaction on specific topics such as patient Peer Support
  • Help identify like-minded people

Members will receive regular KPIN updates. You can also find out more about KPIN on Facebook and on X (formerly Twitter).

Join KPIN as a patient or carer member