Rare Kidney Diseases: Katie's Journey with Loin Pain Haematuria Syndrome

Cover image of Diary of a Kidney Warrior podcast: Episode 114 Rare Kidney Diseases Katie's Journey with Loin Pain Haematuria Syndrome.

Episode 114

Rare Kidney Diseases: Katie's Journey with Loin Pain Haematuria Syndrome

Katie Newell shares her journey with rare kidney condition Loin Pain Haematuria Syndrome (LPHS). Katie discusses the impact of LPHS on her physical and mental health, and her mission to raise awareness around this painful and often misunderstood condition.

Categories

Find out more about rare renal conditions

  • Rare conditions

    Rare kidney disease can be hard to diagnose, and patient information can be difficult to find if the number of people living with the condition is small. Read on for an overview of 20 rare renal conditions and links to more detailed patient support.

  • Living with a rare condition

    Living with any long-term condition can be challenging, but having a rare disease – or being told your child has one – can feel very isolating, and may have a big impact on your emotional wellbeing. But you’re not alone, and there are lots of steps you can take to help yourself and your family.

  • Community support for rare kidney conditions

    If you are living with a rare condition, building a community around yourself can help you feel less isolated, access the latest information and share your lived experience to give hope to others.