Layla's story: living with aHUS

Layla was diagnosed with aHUS, a rare renal condition. When she is not visiting the Great North Children's Hospital for infusions, she is riding bikes and winning dance competitions.

Suddenly, everything was focused on hospital and getting her better.

We chatted with Layla and her dad, Andrew, at the Great North Children's Hospital in Newcastle.

Layla's diagnosis came as a shock to Andrew and Sarah, Layla's mum. Andrew and Sarah initially thought Layla had some kind of infection, but after they noticed bruising on her legs, swollen ankles, and blood in her urine, they realised that it was something more serious.

After chatting with Dr Yincent Tse at the Great North Children's Hospital, Layla was diagnosed with atypical Haemolytic Uraemic Syndrome (aHUS).

Layla visits the hospital, along with her cuddly lamb Lambie, to receive treatment for aHUS and she is back to ballroom and Latin dancing.