Aims of the study

This is a survey led by Dr Jyoti Baharani, University Hospitals Birmingham. It aims to build a clearer picture about how anaemia with CKD affects people's lives- from symptoms and treatment experiences, to the wider emotional and practical challenges.

Study type

Online survey

Who is able to participate?

People living with CKD who have experienced anaemia, Caregivers or close family members of someone with CKD-related anaemia.

Where is the study happening?

UK based.

Open and close dates of recruitment

1st May 2026 - 30th August 2026

How do I get involved?

Click on the survey link to get involved: https://emea.focusvision.com/survey/selfserve/4250/260400?list=1&CKD=$CKD

Summary

A new survey led by Dr Jyoti Baharani, University Hospitals Birmingham, is inviting people living with CKD-related anaemia, as well as caregivers and close family members, to share their experiences.

Anaemia is a common complication of CKD, but its day-to-day impact is not always fully understood. This study aims to build a clearer picture of how anaemia affects people’s lives — from symptoms and treatment experiences to the wider emotional and practical challenges.

By sharing your experience, you can help improve understanding and ultimately support better care and support for others affected in the future.

Who can take part?

• People living with CKD who have experienced anaemia
• Caregivers or close family members of someone with CKD-related anaemia

What’s involved?

• A short survey (around 10 minutes)
• Anonymous and easy to complete
• Your insights will directly contribute to research aimed at improving patient care

Previous interviews with people living with CKD have shown mixed experiences. Some people find following a low potassium diet difficult and restrictive, while others feel it is manageable. This suggests that current advice may not suit everyone, and that more research is needed to understand what works best in real life.

This study aims to gather views from a larger and more diverse group of people with CKD. We want to understand their experiences of managing potassium through diet, the challenges they face, and what support they have received. We will also ask participants what they think researchers should prioritise in the future.

By doing this, we hope to identify practical and patient-centred ways to manage potassium that support both health and quality of life.

Has this study received ethical approval

IRB approval granted on 04/02/2026. ID here: 2026-0191

Lead investigators

Dr Jyoti Baharani (University Hospitals Birmingham), Frances Alpe (Madano)

Who is funding the study

Medice