Your stories

Chronic kidney disease (CKD) can affect anyone. Patients, carers and Kidney Care UK fundraisers from all over the UK share their stories of diagnosis, dialysis, kidney-friendly cooking and more.

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    • Haemodialysis
    • Kidney conditions
    • Rare renal

    Kitty's story: living with nephronophthisis

    For Kitty, a diagnosis with a rare kidney disease meant emergency dialysis and missing out on school. But one donated kidney from her uncle later, Kitty is back living her 'old normal' life.

    • Diet and nutrition
    • Kidney conditions

    Helen and Phil's story: living with kidney disease

    Helen and Phil had thought they'd never be able to enjoy cooking again after their diabetes and kidney disease diagnoses.

    • Haemodialysis
    • Kidney failure
    • Peritoneal dialysis

    Shaun's story: living with IgAN

    Shaun was working on his motorbikes when his doctor diagnosed him with a rare kidney disease. Now Shaun receives haemodialysis treatment and is back working on his bikes.

    • Kidney failure
    • Rare renal
    • Transplant

    Clodagh and Faith's story: living with kidney disease

    Clodagh and Faith are cousins who were both born with congenital nephrotic syndrome, who have each had a kidney transplant, with kidneys donated from family members.

    • Kidney conditions
    • Kidney failure
    • Rare renal
    • Transplant

    Baby Heidi's story: living with kidney disease

    Heidi was diagnosed with a rare kidney disease and spent her first Halloween and Christmas in hospital. Now she is thriving, and the next step is to try and get her a kidney transplant.

    • Rare renal

    Rumer's story: living with Bartter syndrome

    Rumer has lived with the rare condition Bartter syndrome her entire life. Mum Amy explains how the disease has affected both of them, from holidaying to making up pillboxes.

    • Rare renal
    • Transplant

    Sarah's story: living with aHUS

    Sarah was diagnosed with aHUS when she was less than two years old. From failed transplants to the importance of support networks, Sarah talks about her experience of kidney disease.

    • Haemodialysis
    • Rare renal
    • Transplant

    Sally and Rik's story: living with IgAN

    For Rik and Sally, IgAN meant vomiting, exhaustion, and dialysis. Now, 30 years after Rik’s kidney transplant, they are travelling the world, from the Lake District to Chile.

    • Rare renal

    Stewart's story: living with vasculitis

    Stewart's diagnosis of vasculitis has affected everything in his life, but he doesn't let the bad days overwhelm the good. After all, his granddaughter has to make someone laugh.

    • Diet and nutrition
    • Haemodialysis
    • Kidney failure
    • Peritoneal dialysis

    William's story: living with kidney disease

    William Johnston enjoyed a career in catering before starting dialysis and having to adapt to a renal diet. Thanks to the Kidney Kitchen he's found his 'cooking mojo' again

    • Kidney conditions
    • Kidney failure
    • Rare renal

    Layla's story: living with aHUS

    Layla was diagnosed with aHUS, a rare renal condition. When she is not visiting the Great North Children's Hospital for infusions, she is riding bikes and winning dance competitions.

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