Aim of the study
These workshops aim to explore the lived experience of patients and carers/family members of living with kidney failure, in particular focussing on weight prior to transplantation and the potential challenges this causes. In addition, we want to know what you would like from an obesity service and how best to implement this.
Study type
Online workshops
Who is able to participate?
Patients living with kidney failure and obesity, on haemodialysis and awaiting or had transplantation OR carers or family members of someone who is.
Open and close dates of recruitment
22nd April 2025 - 31st December 2025
How do I get involved?
Please email Dr Adrian Brown on [email protected]
Summary
At present there is limited scientific evidence to help guide clinical practice related to management and support of people living with obesity and KF on haemodialysis prior to transplantation and their carers/family. These workshops will further explore the lived experience of patients and carers/family members of living with kidney failure with particular focus on weight prior to transplantation.
Your information will improve our understanding and help support people with obesity accessing weight management in kidney services in the UK.
If you decide to take part, the researcher will contact you to arrange a time for you to attend one of the workshops. This will be by internet video link. The workshops will consist of open-ended questions about your lived experiences of obesity and kidney failure, how you are currently managed within your service regarding obesity, what you would like to see from a obesity service and how best to implement it. These will take about approximately 2 hours. If you agree, we would like to record the workshop for research purposes.
The workshop will involve a variety of activities including brainstorming, open discussion and feedback. You will be reimbursed for your time at the rate of £25 per hour.
Has this study received ethical approval?
The study has full ethical approval from Surrey REC (IRAS 348623 Ethics Approval Number).
Lead investigators
Dr Adrian Brown.
Who is funding the study?
National Institute of Health and Care Research (NIHR) through an Advanced Fellowship.