Kidney Care UK's response to the proposed changes to disability benefits
The government’s “Pathways to Work” green paper sets out proposed changes to disability benefits. Kidney Care UK is working with other health and disability charities to respond to the proposals and to highlight our concerns about cutting vital disability benefits, which we know will be creating anxiety among many people.
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Data shows kidney patients are at increased risk of anxiety and depression yet are unable to access support
A new report from Kidney Care UK has revealed that people with kidney disease are around twice as likely to experience anxiety and depression yet are unable to access psychological and social (psychosocial) support from their medical teams.
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Kidney Care UK's response to the proposed changes to disability benefits
The government’s “Pathways to Work” green paper sets out proposed changes to disability benefits. Kidney Care UK is working with other health and disability charities to respond to the proposals and to highlight our concerns about cutting vital disability benefits, which we know will be creating anxiety among many people.
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World Health Organisation adopts resolution on kidney health
Kidney Care UK alongside Kidney Research UK, Kidney Wales, the National Kidney Federation, Popham Kidney Support, the PKD Charity and the UK Kidney Association are delighted to report that on 23 May 2025 the World Health Assembly formally adopted a resolution on reducing the burden of kidney disease.
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NICE recommends new treatment for IgA nephropathy (IgAN)
NICE (National Institute for Health and Care Excellence) have recommended sparsentan, a new drug for the rare condition IgA nephropathy (IgAN), is made available on the NHS.
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The NHS 10-year plan must deliver better care coordination, urges new report from Kidney Care UK and partners
Kidney Care UK is one of ten leading patient organisations calling on the government to make care coordination a central focus of planned reforms to the NHS. Our Partnership for Change has published the Connected Care: Transforming Care Coordination to urge the government to be ambitious in tackling this fundamental need for kidney patients and all patient communities in the UK.
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Kidney donors are motivated by the desire to help other people, research confirms
Whether donating to a stranger or someone they know, new research shows kidney donors are motivated by the desire to help others.
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Celebrating six months of our Bloody Amazing Kidneys campaign
Since launching last October, Our Bloody Amazing Kidneys campaign has smashed our best expectations. More than 170,000 people have completed our Kidney Health Checker, with approximately half identified as being at risk of developing kidney disease – and that's just the start of the campaign's impact.
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Scottish Medicines Consortium approval for extended access to dapagliflozin for CKD patients in Scotland
The Scottish Medicines Consortium (SMC) have confirmed approval for extended access to a medicine called dapagliflozin for use in some people in Scotland who have chronic kidney disease (CKD). Dapagliflozin is a sodium-glucose co-transporter-2 (SGLT2) inhibitor.
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New interactive storybook for children with rare kidney disease
The interactive storybook Revealing the Secrets of aHUS puts young children at the centre of the story as they explore and learn about the rare kidney disease Atypical Haemolytic Uraemic Syndrome (aHUS).
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Benefit system reform: Kidney Care UK calls for a welfare system that treats people with dignity
Kidney Care UK supports a review of the welfare system, to make sure resources are targeted effectively, but government must ensure the outcome is not reducing or removing essential financial support to people with disabilities who have no choice but to rely on state support.
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Celebrating World Kidney Day 2025
On Thursday 13 March 2025, as part of the World Kidney Day campaign, people across the UK came together to share the message that kidney health matters. From kidney function screenings to sharing experiences to turning social media yellow, it was an incredible day of raising awareness of the importance of our kidneys.
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NICE releases draft guidance recommending against use of new drug for IgA nephropathy (IgAN)
NICE (National Institute for Health and Care Excellence) have recommended sparsentan, a new drug for IgA nephropathy (IgAN), is not made available on the NHS for patients with this kidney condition. This is a draft recommendation and may change once the consultation process is complete.
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AI tool detects diabetes-related kidney disease risk years before symptoms appear
Researchers at the University of Dundee have used AI to detect if people with diabetes are at risk of developing chronic kidney disease years before symptoms emerge or current tests are able to detect problems. This innovative approach could help people access treatment and support earlier, potentially delaying the progress of kidney disease.
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Get involved with World Kidney Day 2025
World Kidney Day is a global campaign aimed at raising awareness of the importance of our kidneys. On Thursday 13 March 2025, help us bring millions of people together to share the message that kidneys matter.
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US woman recovering well after gene-edited pig kidney transplant
A 53 year old woman in America is feeling well over three months after receiving a gene-edited pig kidney. She is the third kidney recipient of this sort of genetically-edited animal transplant and is now the longest living person to have undergone the procedure.
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Kidney Care UK partners with UK Power Networks and Asthma + Lung and Warm Welcome
Kidney Care UK has launched a new partnership with UK Power Network and charities Asthma + Lung and Warm Welcome to provide much-needed emergency support during power cuts for people receiving dialysis at home and other groups who rely on electricity for their medical needs.
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Coronation Street storyline misses opportunity to raise awareness of kidney disease
We are concerned that Coronation Street's recent transplantation storyline misrepresents the reality of living with chronic kidney disease and could have a detrimental effect on the public understanding of the condition.
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Government reforms to the NHS must benefit people living with kidney disease
Kidney Care UK responds to the government's wide-ranging plan to improve the NHS and pledge to cut waiting lists for NHS treatment in England.
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New treatment recommended for anaemia in adults on dialysis
The National Institute for Health and Care Excellence have recommended a new treatment called Vadadustat as an option for treating anaemia caused by chronic kidney disease in adults on dialysis.
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British Transplant Games coming to Oxford in 2025
Athletes with transplants of all abilities, from age three to over 80, will compete at the 2025 Westfield Health British Transplant Games next summer in Oxford.
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Kidney Care UK and South East Water: working together to support kidney patients
Kidney Care UK and South East Water are joining forces to make sure vulnerable people living with chronic kidney disease (CKD) can access the vital support they need.