Beacon cyber security incident - Kidney Care UK potential impact
Beacon CRM, the third party database organisation that Kidney Care UK uses, have experienced a cyber-security incident. Data backups held by them on Kidney Care UK’s behalf may have been accessed.
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Kidney transplant patients will now get double matched blood to reduce sensitisation and rejection
NHS Blood and Transplant (NHSBT) is rolling out a programme to introduce ‘double-matched’ blood transfusions to 24 kidney transplant units across England, with the aim of reducing the number of people waiting years for kidney transplants and people facing kidney transplant rejection. The programme could prevent up to 100 transplants being rejected every year.
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Treatment for high potassium extended to more patients in Scotland
Following a decision made this week by the Scottish Medicines Consortium (SMC), adults living in Scotland who have hyperkalaemia (high potassium) will now, in certain circumstances, be able to access a medicine called sodium zirconium cyclosilicate (Lokelma) via the NHS.
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Beacon cyber security incident – potential impact on Kidney Care UK
Beacon CRM, the third party database organisation that Kidney Care UK uses, have experienced a cyber-security incident. Data backups held by them on Kidney Care UK’s behalf may have been accessed.
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NHS Blood and Transplant calls on people to register their decision to be an organ donor
NHS Blood and Transplant is calling on one million people in the UK to register their decision to be an organ donor by the start of 2027, as figures show over 7,000 people are currently waiting for an organ transplant.
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Kidney Care UK’s #BloodyAmazingKidneys campaign is on the buses (and metro) this summer
Kidney Care UK is partnering with Health Innovations North East and North Cumbria to bring the #BloodyAmazingKidneys campaign to the North East, with posters appearing on buses in the region and on the Tyne & Wear Metro at various points across June, July and August 2026.
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Celebrating one year of the Kidney Care UK Lottery
This July, we're celebrating the first anniversary of the Kidney Care UK Lottery with a special prize draw. Throughout the month, all players will be automatically entered to win one of five guaranteed prizes as well as being in with the chance of winning up to £25,000 every week. Every ticket helps to raise money to support kidney patients and their families.
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Risk of acute kidney injury during Red and Amber heat alerts: what you need to know
Kidney Care UK is issuing advice in response to a rare Red, and Amber alert issued by the UK Health Security Agency (UKHSA) and the Met Office this week because hot weather increases the risk of Acute Kidney Injury (also known as AKI).
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New treatment for IgA nephropathy (IgAN) in Scotland
Adults living in Scotland who have IgA nephropathy (IgAN) will now, in certain circumstances, be able to access a new treatment on the NHS following a decision made today by the Scottish Medicines Consortium (SMC).
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Kidney Care UK and Kidney Wales unite for awareness campaign
Kidney Care UK and Kidney Wales have joined forces to roll out a nationwide awareness campaign to reach people at risk of developing chronic kidney disease (CKD) in Wales. This is the first widespread pan-Wales kidney disease awareness campaign of its kind.
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Tribute to Professor Paula Ormandy
A tribute to kidney nursing, research and patient involvement leader Professor Paula Ormandy. Paula’s contribution to renal nursing, research and the development of future kidney healthcare leaders leaves a remarkable legacy that will continue to shape kidney care in the UK for years to come.
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New study suggests changing blood tests could improve early stage kidney disease diagnosis
A blood test is one of the main ways to get tested for chronic kidney disease (CKD). A recently published story has suggested that changing the blood tests doctors use to calculate a person’s kidney function could improve kidney disease diagnosis and monitoring,
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First treatment for IgA nephropathy approved for use in Scotland
Following their recent assessment, to which Kidney Care UK made a patient group submission, the Scottish Medicines Consortium (SMC) has accepted the medicine budesonide (Kinpeygo®) for use by NHS Scotland for treating adults with IgA nephropathy (IgAN), a rare kidney condition.
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Kidney Care UK welcomes guidance extending access to medication for high potassium levels
Kidney Care UK welcomes new guidance from the National Institute for Health and Care Excellent (NICE) that extends access to a treatment for hyperkalaemia (high potassium levels), a common condition in people with kidney problems.
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New centres specialising in organ perfusion technology could cut through longest kidney transplant waiting list ever
The first of 15 specialised centres across the UK has been opened by NHS Blood and Transplant (NHSBT) as part of a pilot scheme to increase the use of organ perfusion technology and enable hundreds of additional kidney transplants a year, at a time when the transplant waiting list is longer than ever.
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Kidney Care UK at UK Kidney Week 2026
Kidney Care UK was proud to promote our work to improve quality of life for everyone with kidney disease at this year's UK Kidney Week in Harrogate. Organised every year by the UK Kidney Association (UKKA), the event brings healthcare professionals, researchers and organisations working on kidney health together in one place.
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Advice for people with kidney disease regarding the meningitis outbreak in Kent
There is an ongoing meningococcal disease outbreak in Kent. Some cases in this outbreak are now confirmed to be meningitis B, known as MenB. The outbreak is attracting a large amount of media attention, and Kidney Care UK understands some people with kidney disease will be feeling worried.
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Disappointment at NICE draft decision not to recommend a new drug for rare kidney condition
Pegcetacoplan (Aspaveli), a new medicine for people with rare kidney conditions C3 glomerulopathy (C3G) and immune complex membranoproliferative glomerulonephritis (IC-MPGN), is not recommended as an NHS funded treatment following a NICE (National Institute for Health and Care Excellence) draft recommendation published Friday 13 March.
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Kidney Care UK and pharmacists sound the alarm on ibuprofen and kidney health
A Kidney Care UK survey has found that three quarters of people living with kidney disease were not aware that certain over-the-counter pain medications like ibuprofen can affect the kidneys. Working with the National Pharmacy Association, we are urging patients to be aware of the risks of NSAIDS (non-steroidal anti-inflammatory drugs).
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Celebrating our #KidneyWarriors this World Kidney Day
With 150 runners, expected to raise a combined £450,000, Kidney Care UK's team for the TCS London Marathon 2026 is our biggest yet. Around one third of the team are people living with kidney disease or healthcare professionals working with kidney patients, as well as a number of living kidney donors.
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Get involved with World Kidney Day 2026
We're celebrating 20 years of World Kidney Day, the worldwide campaign to raise awareness of chronic kidney disease (CKD) and help people to understand how important kidneys are to our health. Find out how you can get involved in World Kidney Day 2026.
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Celebrate 20 years of World Kidney Day
12 March 2026 will mark 20 years of World Kidney Day, the worldwide campaign dedicated to raising global awareness of the importance of kidneys to our health and combatting chronic kidney disease (CKD).