Beacon cyber security incident - Kidney Care UK potential impact
Beacon CRM, the third party database organisation that Kidney Care UK uses, have experienced a cyber-security incident. Data backups held by them on Kidney Care UK’s behalf may have been accessed.
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NICE recommends two medicines to treat conditions causing kidney disease
Kidney Care UK are pleased to share that the National Institute for Health and Care Excellence (NICE) have recommended two medicines for use in lupus nephritis and IgA nephropathy (IgAN), which both cause kidney disease.
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Five reasons to be optimistic about kidney care in 2026
There are plenty of reasons to be optimistic about the state of kidney care in 2026, from global and UK organisations making kidneys a priority to Kidney Care UK's nation-wide campaigns.
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New report calls for systemic changes to stop kidney disease diagnosis through NHS app, without proper support and guidance
The Falling through the GApp report highlights that systemic changes are needed to ensure thousands of people do not find out they have chronic kidney disease (CKD) via the NHS App, without the support and context needed to come to terms with the diagnosis.
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New treatment for nephropathic cystinosis approved for use in NHS Scotland
A new treatment option for cystinosis, a rare inherited condition initially severely affecting the kidney and eyes usually diagnosed in infants, will soon be available to patients in Scotland, providing a less disruptive alternative to current treatments – and leaving England the only nation in the UK with more limited treatment options.
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Rare kidney diseases are ‘collectively common’ and severely disrupt children’s lives, new report reveals
A new report from Kidney Research UK has found that kidney diseases classed as 'rare' collectively affect over 100,00 people in the UK, and are having a devastating impact on patients' lives – particularly those of children.
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Stay warm and well this winter
As we head into the winter months, we are working with the NHS to make sure everyone living with chronic kidney disease (CKD) knows how to keep warm and well in the colder weather and get the support they need.
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Our #BloodyAmazingKidneys campaign is coming to a street near you!
Kidney Care UK has been selected as the JCDecaux Community Channel Partner for October 2025. This means that, throughout the month, our #BloodyAmazingKidneys campaign will be seen on billboards across the UK, helping thousands more people find out about Kidney Care UK and the importance of kidney health.
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Organ Donation Week 2025: how you can get involved
This Organ Donation Week (22 – 28 September) we’re joining with the transplant community to help celebrate the thousands of lives changed by organ donation since 1995, when the organ donor register was created.
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Kidney Care UK supporters raise funds sky high by pulling airplane 50 metres down runway
Kidney Care UK supporters and staff raised almost £4,000 by pulling a Boeing 737 plane down 50 metres of runway at Bournemouth Airport over the August bank holiday weekend.
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Shingles vaccine to be made available to immunosuppressed adults in September 2025
From September, the UK shingles vaccination programme will be expanded to people 18 years and older who have severely suppressed immune systems.
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Plan to identify rare kidney conditions with NHS newborn screening
The ongoing Generation Study being delivered in partnership with the NHS aims to use genome sequencing technology to identify over 200 rare genetic conditions in newborn babies, including rare kidney diseases, and to start treating them earlier.
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Public urged to talk about organ donation as transplant waiting list hits record high, and number of donors falls
Kidney Care UK is calling for a UK-wide awareness campaign and education programme in reaction to new figures released by NHS Blood and Transplant revealing that the active transplant waiting list is the longest on record, with almost 7,000 people waiting for a kidney transplant, while the number of life-saving transplants from deceased organ donors has dropped.
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Kidney Care UK at UK Kidney Week: awareness, innovation and kidney-friendly treats
Kidney Care UK was proud to promote our mission to improve the quality of life for everyone with kidney disease at this year's UK Kidney Week in Bournemouth.
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Responding to the welfare reform bill: how your voices showed the impact of kidney disease
The government's Universal Credit and Personal Independence Payment Bill has passed the first stage towards becoming law, but as a results of MPs hearing from constituents like you, major changes were made to this potentially devastating bill.
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Kidney Care UK urges MPs to reject the welfare cuts in the Universal Credit and Personal Independence Payment Bill
Next week, parliament will be voting on the proposed Universal Credit and Personal Independence Payment Bill, which would introduce changes to the way people are assessed for Personal Independence Payments (PIP) and health related Universal Credit (UC). Kidney Care UK is strongly opposed to the Bill.
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Kidney Care UK and Affinity Water working together to provide vital support for thousands of kidney patients
Kidney Care UK, the UK's leading kidney patient support charity, and Affinity Water have joined forces to ensure vulnerable customers living with chronic kidney disease (CKD) benefit from vital additional support available to them.
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Kidney Care UK’s Chair of Trustees awarded UKKA Lifetime Achievement Award 2025
Celebrating a career marked by pioneering clinical research, leadership in guiding national kidney policy, and extensive mentorship, Dr Graham Lipkin accepted the UKKA Lifetime Achievement Award earlier this month on stage at UK Kidney Week.
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Data shows kidney patients are at increased risk of anxiety and depression yet are unable to access support
A new report from Kidney Care UK has revealed that people with kidney disease are around twice as likely to experience anxiety and depression yet are unable to access psychological and social (psychosocial) support from their medical teams.
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Kidney Care UK's response to the proposed changes to disability benefits
The government’s “Pathways to Work” green paper sets out proposed changes to disability benefits. Kidney Care UK is working with other health and disability charities to respond to the proposals and to highlight our concerns about cutting vital disability benefits, which we know will be creating anxiety among many people.
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World Health Organisation adopts resolution on kidney health
Kidney Care UK alongside Kidney Research UK, Kidney Wales, the National Kidney Federation, Popham Kidney Support, the PKD Charity and the UK Kidney Association are delighted to report that on 23 May 2025 the World Health Assembly formally adopted a resolution on reducing the burden of kidney disease.
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NICE recommends new treatment for IgA nephropathy (IgAN)
NICE (National Institute for Health and Care Excellence) have recommended sparsentan, a new drug for the rare condition IgA nephropathy (IgAN), is made available on the NHS.