Aim of the study
- To evaluate patient experiences of calciphylaxis diagnosis and treatment
- To learn from patients to improve the care, experience and well-being of people diagnosed with calciphylaxis.
- To raise awareness of calciphylaxis to help achieve earlier diagnosis, to improve patient outcomes
Study type
Qualitative: patient interviews
Who is able to participate?
Anyone with a diagnosis of calciphylaxis (now or within the last 3 years). Relatives and/or carer can also be included where it is not possible to interview the patient.
How do I get involved
Email [email protected] to let them know you’re interested and provide your contact details for someone to get in touch.
Has this study received ethical approval?
Yes: 23/PR/0708
Who is funding the study?
Kidney Research UK and Kidney Wales.