Claiming Personal Independence Payment (PIP)

Kidney Care UK Advocacy officer for Wales, Linzi Isaac, explains how to claim Personal Independence Payment (PIP) and the PIP application process.

Before I joined Kidney Care UK I did a lot of work around supporting people with Personal Independence Payment (PIP) claims. Anyone who has had the dense application pack pass through their letterbox knows the feeling of despair that comes along with having their illness or disability questioned.

Helping people navigate PIP applications is a major part of my role as a Kidney Care UK Patient Support & Advocacy Officer and I’ve put together a guide on what to expect and where to seek support.

  • Starting the PIP application process
  • Completing the PIP application form
  • The PIP Health Assessment explained
  • Receiving the PIP award decision
  • Free PIP application support for CKD patients

Starting the PIP application process

The first step to claiming PIP is to contact the DWP on 0800 917 2222 to request an application form. A carer can do this for you if you’re not able to.

Make sure you have your National Insurance number and banking details to hand, as these will be asked by the call handler.

Your claim will be active from the date of this call and an application form will be sent to you in the post a few days later.

Completing the PIP application form

I always advise patients to use this time wisely to think about how they will complete the form and gather any supporting evidence.

Ask your consultant or a member of your renal team to provide a letter of support towards your PIP claim, along with any other consultants or outpatient departments that are treating you for other conditions. If your unit has a Renal Social Worker they can help you request the support letters.

It can be hard to answer questions on how your condition affects you when the ways you’ve adapted to do certain tasks have become your new normal. One way of approaching these questions is to keep a diary for a day or a week and log every activity you do. For every task try to cover the following:

  • What task you are trying to complete?
  • Are you using any aids/appliances, or having help from someone else?
  • How long does it take you to complete the task?
  • Are you having any difficulties?
  • Does it cause you any pain/discomfort?
  • How you feel afterwards?

After tracking your activities over the course of a day, or preferably a week if your condition varies day-to-day, you will begin to see a pattern of tasks you have difficulty completing or need help with. For example, you may realise that you’re subconsciously avoiding using your fistula arm to pick up items or that you’ve had to stop and catch your breath several times throughout the day. This information will help you form a detailed answer to each question in the application form and can be sent as supplementary evidence if you wish.

If you’re worried about completing your application form, your Kidney Care UK Patient Support & Advocacy Officer can help you at this stage.

You usually have 28 days to complete and return your application form.

The PIP Health Assessment explained

Once you have completed your application form and sent off supplementary evidence, you will be given a date for your health assessment. For the time being, face-to-face assessments for sickness and disability have been suspended. Many people who have made a new claim for PIP have been receiving their assessment in the form of a phone call to prevent further delay to much needed financial support.

As the assessment can take place many weeks or months after you submit your application form, it is a good idea to keep a copy of your application form to familiarise yourself with what you previously reported.

The PIP health assessment is carried out by someone with a medical background such as a nurse or paramedic, but they may not have in-depth experience of kidney disease.

During the appointment you will be asked questions similar to those in the application form and asked for more detail if needed. The face-to-face assessment would also assess a range of physical movements but as this is not possible over the phone your mobility will be assessed on the written medical evidence instead.

As with the face-to-face assessment, you are entitled to have someone accompany you during your phone assessment appointment for moral support. If this is not possible then it is important to let the assessor aware of this so it can be noted.

Receiving the PIP award decision

You will receive a letter a number of weeks after your assessment, stating your award and points breakdown for each category.

If you are satisfied with the award then great news, you don’t need to worry until your PIP is due for review.

If you’re not satisfied with the result, the first stage of appealing is called a Mandatory Reconsideration (MR), which can be requested over the phone. When requesting a MR ask to be sent a copy of the assessor’s report as you will be able to see detailed reasoning behind the decision and will help you discover which additional evidence you’ll need to supply. It is strongly recommended that you send further information as to why you disagree with the decision (for example a letter of support from a health professional or member of your renal team). The MR process is paper-based and will not require a further health assessment.

If you are still not satisfied after the second decision letter, there is the option to progress your claim to tribunal. During a tribunal your application and all of the evidence provided will be looked at by a panel including a judge and a medical practitioner. The panel are independent of the government, but a representative from the DWP will also be present (they will not be involved in making the final decision). Tribunal hearings are taking place remotely during the coronavirus pandemic and you will be invited to take part over the phone. You do not have to attend the hearing, but you can request that someone accompanies you for support if you do.

Free PIP application support for CKD patients

Claiming for a welfare benefit can feel very daunting but free expert advice is available to you at every stage of the process from Kidney Care UK. Sometimes it can be as simple as talking it over with someone before you begin completing a form.

Your Kidney Care UK Patient Support & Advocacy Officer will use their wealth of experience to advise you on the process and provide practical support to help you fill out the forms if needed. They can also help you collect all the information and evidence needed to support your claim or appeal.

We also offer a free PIP Helper, a digital support tool to help you navigate the PIP application process.

More PIP application support

  • The Kidney Care UK PIP Helper

    Your FREE digital support tool to help you apply for Personal Independence Payment (PIP).

  • Cost of living

    Are you struggling with the rising costs of living? The constant pressure of trying to make ends meet is tipping people with chronic kidney disease and their families over the edge. Kidney Care UK is here to help.

  • Benefits for kidney patients

    Find out more about the benefits and financial support you may be entitled to when you are living with kidney disease.